| General
Special Needs Sites |
| NICHCY |
Compiles
disability-related resources in each state, and creates
State Resource Sheets. This handy resource sheet will help
you locate organizations and agencies within your state
that address disability-related issues, including:
- Governors
and U.S. Senators
- State
agencies serving children and youth with disabilities
- State
chapters of disability organizations and parent groups
- Parent
training and information projects
|
General
Information
|
http://www.children-special-needs.org/ |
| Specific
Special Needs Sites |
| Albinism |
http://www.albinism.org/
The National Organization for Albinism and Hypopigmintation. |
| Amputee |
International Child Amputee Network |
| Blindness
and Visual Impairments |
Strabismus
(crossed eyes):
http://www.strabismus.org/
St. Luke's Cataract and Laser Institute
|
| Cerebral
palsy |
4
My Child
United Cerebral Palsy |
| Cleft
lip and/or palate |
http://www.nlm.nih.gov/medlineplus/cleftlipandpalate.html
Good overview of issues relating to the range of cleft issues
and treatments.
www.widesmiles.org
Comprehensive site maintained by adoptive parent of cleft-affected
children.
http://www.widesmiles.org/ct/subscribe.html
Instructions for joining cleft discussion list.
http://www.cleftadvocate.org
"Your On-Line Source for Education and Inspiration!"
http://groups.yahoo.com/group/AdoptCleft
Yahoo
support group for people who have adopted children internationally
with cleft medical issues.
|
| Club
Foot and other foot deformities |
Cincinnati
Childrens Hospital |
| Developmental Delays |
Keepkidshealthy.com |
| Drug
Exposed Infants |
National
Resource Center for Respite and Crises Care services. |
| Epilepsy |
http://www.kidsepilepsy.com/ |
| Hand
Deformities |
http://www.indianahandcenter.com/
The spectrum of congenital upper extremity deformities include
a variety of defects or anomalies ranging from the partial
duplication of a single digit or thumb, to the complete absence
or failure of formation an entire limb. These uncommon anomalies
may occur singularly, or may occur in combination with deformities.
In addition, these anomalies may be an isolated finding at
birth, or they may be related to a systemic or generalized
syndrome. |
| Hearing
impairment |
http://www.nidcd.nih.gov/health/hearing/index.asp
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD USA 20892-2320
|
| Heart
defect |
Medical
http://www.pediheart.org/parents/index.html
http://www.marchofdimes.com/
Cove Point Foundation
Resources
http://www.tchin.org/
http://www.kidshealth.org/
March
of Dimes Website
|
| Hepatitis
B+ |
http://www.comeunity.com/adoption/health/hepatitis/index.html
http://www.cdc.gov/ncidod/diseases/hepatitis/b/fact.htm |
| Hypospadia |
http://www.um-urology.com/patients/hypospadias.html
http://www.meddean.luc.edu/lumen/MedEd/urology/abnpendv.htm |
| Imperforate
Anus |
http://www.cincinnatichildrens.org/svc/alpha/c/colorectal/
http://www.pullthrunetwork.org/ |
| Limb
Differences |
http://groups.yahoo.com/group/AdoptingChildrenWithLimbDifferences/
This is a newly created group for anyone who is considering,
paperchasing or has adopted a child with limb differences. |
| Polio |
http://www.post-polio.org/ipn/fact.html
International Polio Network
|
| Post
Polio Syndrome |
http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm |
| Rickets |
http://www.nlm.nih.gov/medlineplus/rickets.html
http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Rickets?OpenDocument |
| Thalassemia |
Kids Health - Thalassemia
http://kidshealth.org/parent/medical/heart/thalassemias.html
ComeUnity - An Overview of Thalassemia for Parents Adoption
Int'lly
http://www.comeunity.com/adoption/health/thalessemia.html
Cooley's Anemia Foundation - About Thalassemia
http://www.thalassemia.org/sections.php?sec=1
Northern California Comprehensive Thalassemia Center
http://www.thalassemia.com/what_is_thal.html |
Undescended Testicle |
http://www.vh.org/pediatric/patient/pediatrics/cqqa/undescendedtesticle.html |
| Vestibular Disorders |
http://www.vestibular.org
Vestibular Disorders Association |
| Support
Groups |
| ASIA's
Waiting Child Mentoring Program |
Asia
has a group of experienced parents and mentors that are willing
to share their experience adopting a special needs child.
If you would like to talk with a family that has adopted a
child with a specific special need or someone in your local
area that has been through the process of adopting a Waiting
Child, please contact
us. |
| Yahoo's
Waiting Family Group |
http://groups.yahoo.com/group/WaitingChildrenChina/
This
group is for families interested in adopting a WAITING
CHILD
(with some kind of special need) from China. Note: This
group is for prospective families at any phase of the
adoption
process and also agency representatives.
|