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Useful Links

General Special Needs Sites
NICHCY

Compiles disability-related resources in each state, and creates State Resource Sheets. This handy resource sheet will help you locate organizations and agencies within your state that address disability-related issues, including:

  • Governors and U.S. Senators
  • State agencies serving children and youth with disabilities
  • State chapters of disability organizations and parent groups
  • Parent training and information projects
General Information
http://www.children-special-needs.org/
Specific Special Needs Sites
Albinism http://www.albinism.org/
The National Organization for Albinism and Hypopigmintation.
Amputee International Child Amputee Network
Blindness and Visual Impairments

Strabismus (crossed eyes):
http://www.strabismus.org/
St. Luke's Cataract and Laser Institute

Cerebral palsy 4 My Child
United Cerebral Palsy
Cleft lip and/or palate

http://www.nlm.nih.gov/medlineplus/cleftlipandpalate.html
Good overview of issues relating to the range of cleft issues and treatments.

www.widesmiles.org
Comprehensive site maintained by adoptive parent of cleft-affected children.

http://www.widesmiles.org/ct/subscribe.html
Instructions for joining cleft discussion list.

http://www.cleftadvocate.org
"Your On-Line Source for Education and Inspiration!"

http://groups.yahoo.com/group/AdoptCleft
Yahoo support group for people who have adopted children internationally with cleft medical issues.

Club Foot and other foot deformities Cincinnati Childrens Hospital
Developmental Delays Keepkidshealthy.com
Drug Exposed Infants National Resource Center for Respite and Crises Care services.
Epilepsy http://www.kidsepilepsy.com/
Hand Deformities http://www.indianahandcenter.com/
The spectrum of congenital upper extremity deformities include a variety of defects or anomalies ranging from the partial duplication of a single digit or thumb, to the complete absence or failure of formation an entire limb. These uncommon anomalies may occur singularly, or may occur in combination with deformities. In addition, these anomalies may be an isolated finding at birth, or they may be related to a systemic or generalized syndrome.
Hearing impairment

http://www.nidcd.nih.gov/health/hearing/index.asp
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD USA 20892-2320

Heart defect

Medical
http://www.pediheart.org/parents/index.html
http://www.marchofdimes.com/
Cove Point Foundation

Resources
http://www.tchin.org/
http://www.kidshealth.org/
March of Dimes Website

Hepatitis B+ http://www.comeunity.com/adoption/health/hepatitis/index.html
http://www.cdc.gov/ncidod/diseases/hepatitis/b/fact.htm
Hypospadia http://www.um-urology.com/patients/hypospadias.html
http://www.meddean.luc.edu/lumen/MedEd/urology/abnpendv.htm
Imperforate Anus http://www.cincinnatichildrens.org/svc/alpha/c/colorectal/
http://www.pullthrunetwork.org/
Limb Differences http://groups.yahoo.com/group/AdoptingChildrenWithLimbDifferences/
This is a newly created group for anyone who is considering, paperchasing or has adopted a child with limb differences.
Polio

http://www.post-polio.org/ipn/fact.html
International Polio Network

Post Polio Syndrome http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm
Rickets http://www.nlm.nih.gov/medlineplus/rickets.html
http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Rickets?OpenDocument
Thalassemia Kids Health - Thalassemia
http://kidshealth.org/parent/medical/heart/thalassemias.html
ComeUnity - An Overview of Thalassemia for Parents Adoption Int'lly
http://www.comeunity.com/adoption/health/thalessemia.html
Cooley's Anemia Foundation - About Thalassemia
http://www.thalassemia.org/sections.php?sec=1
Northern California Comprehensive Thalassemia Center
http://www.thalassemia.com/what_is_thal.html

Undescended Testicle
http://www.vh.org/pediatric/patient/pediatrics/cqqa/undescendedtesticle.html
Vestibular Disorders http://www.vestibular.org
Vestibular Disorders Association
Support Groups
ASIA's Waiting Child Mentoring Program Asia has a group of experienced parents and mentors that are willing to share their experience adopting a special needs child. If you would like to talk with a family that has adopted a child with a specific special need or someone in your local area that has been through the process of adopting a Waiting Child, please contact us.
Yahoo's Waiting Family Group

http://groups.yahoo.com/group/WaitingChildrenChina/

This group is for families interested in adopting a WAITING CHILD (with some kind of special need) from China. Note: This group is for prospective families at any phase of the adoption process and also agency representatives.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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